Compassionate Care Alliance Caring Resources Guide - A Gateway to Information, Care Choices and Planning
Websites, Books, Videos


Websites

  • Americans for Better Care of the Dying www.abcd-caring.org

    Hospiceweb
    Offers a message board, a list of answers to frequently asked questions (FAQs) about hospice and links to numerous hospice-related sites throughout the world.
    www.hospiceweb.com

    Hospicenet
    Online resource that includes such information as "what questions should I ask about hospice care," and includes FAQs.
    www.hospicenet.org

    American Hospice Foundation
    Includes a collection of articles with practical information for the dying or the grieving. Offers "Grief at School Training Guide & Video" to help teachers respond to grieving children and on-site training workshops.
    2120 L Street, NW, Suite 200
    Washington, DC 20037
    (202) 223-0204
    www.americanhospice.org

    Hospice Foundation Of America
    The site provides guidelines for choosing hospice, tips for dealing with grief and other consumer resources, such as a collection of hospice readings and Web links. Call the foundation to find a hospice near you.
    2001 S Street, NW, Suite 300
    Washington, DC 20009
    (202) 638-5419 or 1-800-854-3402
    www.hospicefoundation.org

    American Academy of Hospice and Palliative Medicine
    Includes a selection of links to general hospice informational sites.
    4700 W. Lake Ave.
    Glenview, IL 60025-1485
    (847) 375-4712
    www.aahpm.org

    The Hospice and Palliative Nurses Association
    Offers hospice and palliative care nurses a way to exchange information, experiences, and ideas. HPNA also promotes understanding of the specialties of hospice and palliative nursing and palliative care research.
    Penn Center West One, Suite 229
    Pittsburgh, PA 15276
    (412) 787-9301
    www.hpna.org

    National Hospice Foundation
    Informs the public about the quality end-of-life care that hospice provides; including information on choosing a hospice and communicating your end-of-life wishes.
    1700 Diagonal Rd, Suite 300
    Alexandria, VA 22314
    (703) 516-4928
    www.hospiceinfo.org

    National Hospice and Palliative Care Organization
    National membership organization for Medicare-certified hospices. Offers a hospice information database and provides statistical and educational material about hospice care. Call the toll-free HelpLine at (800) 658-8898 to find a hospice near you.
    1700 Diagonal Road, Suite 300
    Alexandria, VA 22314
    (703) 837-1500
    www.nhpco.org

    Books

    DYING WELL: PEACE & POSSIBILTITIES AT THE END OF LIFE
    Ira Byock, Riverhead Books, 1997

    FINAL GIFTS: UNDERSTANDING THE SPECIAL AWARENESS, NEEDS & COMMUNICATIONS OF THE DYING.
    Maggie Callanan & Patricia Kelley, Bantam Books, 1992

    PEACEFUL DYING
    Daniel R. Tobin, M.D. with Karen Lindsey

    WHEN YOU KNOW YOU"RE DYING/ONE YOU LOV IS DYING: 12 THOUGHTS TO GUIDE YOU THROUGH HTE DAYS AHEAD.
    James E. Miller, Willowgreen Pub., 1997

    HANDBOOK FOR MORTALS: GUIDANCE FOR PEOPLE FACING SERIOUS ILLNESS.
    Joanne Lynn, Oxford University Press, 1999